We are the contact point for those affected, their families, and anyone interested in the rare copper storage disease Wilson’s disease. Our goal is to share knowledge, promote exchange, and help people cope with the disease together.
Reliable information on the diagnosis and treatment of Wilson’s disease.
Connect and share with others affected and their families.
Stay informed about meetings, symposiums, and key dates.
We aim to raise awareness, promote knowledge exchange, and support those affected by Wilson’s disease through community, education, and medical collaboration.
We are a non-profit organization dedicated to raising awareness of Wilson’s disease and supporting those affected. Through education, community events, and collaboration with medical professionals, we empower patients and families to better understand and manage this rare condition. Our mission is to foster connection, share knowledge, and provide a strong support network across Switzerland.
We are dedicated to offering reliable information, building strong connections within the community, and advocating for better understanding and treatment of Wilson’s disease. Our team works tirelessly to ensure patients and families feel supported and empowered.
The support and information I’ve received from this community have been invaluable. As a caregiver, knowing I’m not alone and being able to connect with others who understand has made all the difference.
Julia M.
CaregiverThanks to the resources provided, I finally understood my diagnosis and could start managing my health better. The knowledge and care shared by this community have truly empowered me.
Mark T
PatientThe events and meetings organized by this group have been so helpful. I’ve learned more about Wilson's disease than I ever thought possible and feel much more confident in my treatment plan.
Sophia W
PatientWe provide a comprehensive range of resources, including articles, guides, and expert insights, to help patients and their families understand Wilson’s disease better.
Healthy is not the person who is free of complaints, problems, or illnesses, but the person who can deal with life’s unexpected surprises flexibly and appropriately. Nossrat Peseschkian 1933 – 2010