comprehensive information available for download.
The SRSK records information on people with rare diseases throughout Switzerland. The project aims to describe the prevalence of rare diseases in Switzerland, promote research into rare diseases, and facilitate networking between those affected and professionals. Important information about the SRSK and all the documents required for registration can be found
However, if you would like to exchange ideas, we recommend the following websites and forums in German and English:
German
English
Alliance of Rare Diseases Switzerland.
Rare Disease Action Forum. (English)
Swiss Liver Patients Association
hepatologist, Bern
neurologist, Zurich ( hans.jung@usz.ch )
Gastroenterologist, Zurich ( beat.muellhaupt@usz.ch)
gastroenterologist, Lugano/Bern ( andrea.degottardi@insel.ch )
gastroenterologist, Lausanne ( darius.moradpour@chuv.ch )
